Welcome to Mast Cell Action
In 2016, we set out on a mission to make a meaningful difference in the lives of those affected by MCAS. Mast Cell Action is more than a charity; it's a movement, a community, and a collective voice that echoes the needs and concerns of those we serve.
We provide support to the MCAS Community and work to raise awareness and understanding of MCAS amongst relevant professionals and organisations. Our dedication to the MCAS community extends far beyond words; it's at the heart of everything we do.
We provide support in multiple ways and are led by the voice of the MCAS community. Through virtual sessions, supportive resources, and awareness-raising activities, we are here for everyone in the UK living with MCAS.
Our driving force is the profound desire to improve the lives of everyone affected by MCAS. We are deeply committed to standing by the side of the mast cell disease community, their families and dedicated doctors. We don't merely hope for change; we actively work to create it.
Our vision is bold and unwavering: a world where every person affected by Mast Cell Disease is not only heard but truly understood. We envision a world where their symptoms are acknowledged, leading to accurate diagnoses and, most importantly, the compassionate care and support they need and deserve.
At Mast Cell Action, we believe in the power of community, the strength of passion, and the boundless potential of collective action. We invite you to join us on this incredible journey, whether you're someone touched by MCAS, a dedicated healthcare professional, or just someone who shares our enthusiasm for making the world a better place for those affected by mast cell diseases. Together, we can transform this vision into reality.
"The complete vacuum of understanding and support within the medical system convinced me something needed to be done, so when I was approached by Gawain and Jennie, I was happy to join them in founding Mast Cell Action. My background is one of branding, design and communications so I was able to help in the initial stages of sorting a name, branding, website and so on. I was subsequently volunteered to raise some money which led to undertaking two walks of the Thames along with 15 different dogs (another story!)" Chris Wood, Trustee
Our Mission
Mast Cell Action's vision is of a world where everyone affected by Mast Cell Disease has their symptoms acknowledged and experiences listened to, to achieve a correct diagnosis, and to receive the care and support that they need.
Our charitable objective is to improve the lives of people affected by Mast Cell Activation Syndrome.
Our Trustees and Leadership team
Most of us have direct experience of MCAS, either as a patient, through a family member or through a friend. Though our stories are each unique, they share the common thread of the difficulties and frustrations that accompany learning to cope with chronic illness, searching for a diagnosis, and struggling to receive treatment.
Gawain Palin
Gawain is a Mast Cell Action Trustee and has MCAS. After experiencing a spell of "progressively deteriorating bizarre episodic symptoms" and spending a lot of money on private health consultations, seeing numerous specialists, Gawain was eventually diagnosed with MCAS.
However, his struggles led to depression and impacted his family life, motivating him to establish Mast Cell Action with Chris in 2015. Read more about Gawain here.
You can contact Gawain at Gawain@MastCellAction.org
Chris Wood
Chris is a Mast Cell Action trustee and says "The complete vacuum of understanding and support within the medical system convinced me something needed to be done, so when I was approached by Gawain and Jennie, I was happy to join them in founding Mast Cell Action.
My background is one of branding, design and communications so I was able to help in the initial stages of sorting a name, branding, website and so on. I was subsequently volunteered to raise some money which led to undertaking two walks of the Thames along with 15 different dogs (another story!)". You can read more about Chris here.
You can contact Chris at Chris@MastCellAction.org
Jackie Fisher
Jackie is a trustee and treasurer and was introduced to Mast Cell Action by her son, Scott Fisher. Scott ran 27 marathons in 2021 raising an incredible £270k. Jackie's daughter-in-law, Megan, has MCAS.
Jackie says "The passion of those involved in the charity is making such a difference to so many people’s lives. It is incredibly important to support it's mission to continue to raise awareness and expand the support network for those affected."
You can read more about Jackie here.
You can contact Jackie at Jackie@MastCellAction.org
Eric Grounds
Eric is a trustee and his background spans military service, business, sports and he is an author. Key to his skill set, is extensive charity experience, having worked in the voluntary sector for over 30 years and being a Fellow of the Chartered Institute of Fundraising.
You can read more about Eric here.
You can contact Eric at eric@mastcellaction.org
Claire Bounds
Claire Bounds, (BA Psychology, PgDip HR, MSc HR, Assoc CIPD) is a Trustee at Mast Cell Action. Claire has volunteered with us for many years, overseeing recruitment, policies and procedures, and exit procedures.
Among other tasks, Claire also supports with health and safety, and is our safeguarding lead. You can read more about Claire here.
You can contact Claire at claire@MastCellAction.org
Joy Mason
Joy is the Director of Operations, Services and Engagement and leads the day to day running of our charity. Joy has MCAS and cares for 2 children with MCAS. Having worked in various charities for the past decade, she has extensive experience which she brings to the team.
Her personal experience with MCAS provides her with a deep understanding and empathy for those we aim to help, ensuring our initiatives are both relevant and impactful. You can read more about Joy's experiences with MCAS and her work here.
You can contact Joy at Joy@MastCellAction.org.
Our Team
We are a small team, but what we lack in size we make up for in determination, enthusiasm and a relentless commitment to making life better for people with MCAS.
Despite our size, we have a big vision and an unwavering dedication to achieving our goals. We pride ourselves on our ability to adapt and persevere, constantly pushing the boundaries of what’s possible.
Our Supporters
We have an incredible team of volunteers who support a variety of functions across the charity. Every single person who supports the work we do is key in helping us to meet our charitable aims. They are invaluable in helping the charity achieve its objectives. You can read more about some of volunteers here.
Mast Cell Action would like to thank Purpose.co.uk and Blinkio.co.uk for their very generous support in designing and building this website.
Our address
Mast Cell Action, PO Box 11152, NOTTINGHAM, NG12 5YZ
Registered Charity Number 1164917
Become a friend
Sign up to become a Friend of Mast Cell Action so we can keep you up to date on our progress and on how to get involved in our latest campaigns and initiatives.
Donate
Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference to those affected by MCAS.