Articles

Mast cell activation disease: a concise practical guide for diagnostic workup and therapeutic options

Molderings GJ, Brettner S, Homman J et al. Mast cell activation disease: a concise practical guide for diagnostic workup and therapeutic options

Medication log - adult

A medication timetable to log daily medications

Doctor visit preparation form

A form designed to help you to plan the questions you would like to ask and symptoms you would like to discuss at medical appointments.

Download the poster presented at BSG 2021

Dear Doctor, Could your patient’s unexplained gastrointestinal symptoms be caused by Mast Cell Activation Syndrome?

The puzzle of you

In the same way that a jigsaw is made up of lots of different pieces, each of us are madeup of lots of different parts too. This puzzle can help you to talk about MCAS being just one part of that puzzle.

Your wellbeing bucket

An exercise to help children identify the things which make them feel good, those which don't and what helps them to feel better when things aren't going so well.

The puzzle of you

In the same way that a jigsaw is made up of lots of different pieces, each of us are made up of lots of different parts too. This jigsaw helps us to see that MCAS is just one piece of the puzzle.

Medication log - children

A medication log blank which you can use to record medications, dosages and medication times in order to keep on track.

Ball of wool game

The ball of worries activity introduces children to a practical coping strategy to make thoughts and worries appear more manageable.

Casper the chameleon colouring page

A colouring picture of Casper the chameleon to download and print. We would love to see your completed pictures!

The utility of measuring urinary metabolites of mast cell mediators in systemic mastocytosis and mast cell activation syndrome.

Butterfield J, Weiler CR. The utility of measuring urinary metabolites of mast cell mediators in systemic mastocytosis and mast cell activation syndrome. The Journal of Allergy and Clinical Immunology: In Practice. 2020 Sep 1;8(8):2533-41.

Mast Cell Disorders Committee Work Group Report: Mast cell activation syndrome (MCAS) diagnosis and management.

Weiler CR, Austen KF, Akin C, et al. AAAAI Mast Cell Disorders Committee Work Group Report: Mast cell activation syndrome (MCAS) diagnosis and management. J Allergy Clin Immunol. 2019;144(4):883-896.

Recent advances in our understanding of mast cell activation–or should it be mast cell mediator disorders?. Expert review of clinical immunology.

Theoharides TC, Tsilioni I, Ren H. Recent advances in our understanding of mast cell activation–or should it be mast cell mediator disorders?. Expert review of clinical immunology. 2019 Jun 3;15(6):639-56.

Afrin LB, Ackerley MB, Bluestein LS, et al. Diagnosis of mast cell activation syndrome: a global 'consensus-2'

Afrin LB, Ackerley MB, Bluestein LS, et al. Diagnosis of mast cell activation syndrome: a global" consensus-2". Diagnosis (Berlin, Germany). 2020 Apr 22.

Weiler CR. Mast cell activation syndrome: tools for diagnosis and differential diagnosis.

Weiler CR. Mast cell activation syndrome: tools for diagnosis and differential diagnosis. The Journal of Allergy and Clinical Immunology: In Practice. 2020 Feb 1;8(2):498-506.

Bibliography of 'must-read' MCAS papers, 2022.

Our bibliography of 'must-read' MCAS papers, updated in 2022.

Three children's stories

A comparative review of three paediatric case examples - could mast cell activation and mast cell mediators be a cause of the multiple symptoms experienced by children like Lily, Jensen and Caspyn?

Mast Cell Action Brochure; September 2020

Our brochure about MCAS, including what is MCAS? Triggers and symptoms, diagnosis and management.

Parent support leaflet

Parent support leaflet

A leaflet designed to help support parents and carers of children living with systemic mast cell activation and MCAS. It provides suggestions for how to care for your personal wellbeing whilst caring for someone with MCAS, and shares ideas and suggestions for how to communicate and support each other as a family.

Suzy's story

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