Articles

MCAS for teachers

This pack can be used to share information about MCAS with teachers and other care-givers.

Letter for schools

Use this letter template along with the Freedom kit to share your child's needs with their school or childcare provider

My Feel better plan

When we are feeling worried or scared it can be tricky to find a way to feel better about the things that are bothering us. Download and complete this plan which you can follow when those worries feel overwhelming.

The Spoon Theory

People with chronic illnesses like MCAS often have limited energy. In the spoon theory, by Christine Miserandino, this is represented as having 12 spoons per day. This can help to explain the impact of some everyday tasks on those living with chronic illness.

MCAS Self-management toolkit

This toolkit contains information about substances in food and in the environment that can affect mast cell activity or trigger MCAS symptoms. It also includes practical advice to help you understand and avoid these triggers, as needed.

MCAS symptom log

The histamine bucket exercise

This histamine bucket is a useful visual aid in trying to understand the impact of factors contributing to histamine levels.

Ask Ingrid app

A free app developed by the Food Intolerance Network, Australian Society for Public Health. It contains comprehensive information about foods containing histamine, sorbitol, gluten, lactose, fructose and FODMAPs.

Baliza.de. Histamine, fructose & co food intolerance app

A smartphone app that provides practical, evidence-based information about foods containing common triggers such as histamine, tyramine, lactose, fructose, sorbitol and fructose.

Monash University FODMAP app

A smartphone app developed by experts at Monash University. Contains detailed information about foods containing FODMAPs as well as a useful symptom tracker feature.

Swiss Interest Group Histamine Intolerance (SIGHI)

SIGHI is an organisation that provides information about histamine-related disorders.

The low histamine chef

Blogs, books and recipes written by the low histamine chef (Yasmina Ykelenstam), a health journalist who has managed her own histamine intolerance for more than 10 years.

Becky's MCAS Journey

An infographic of a patient's experience with MCAS.

Diagnosing MCAS Leaflet

A leaflet discussing diagnostic criteria, biomarker tests and important information for diagnosis.

Mast cell activation symptoms are prevalent in Long-COVID

Weinstock LB, Brook JB, Walters AS, Goris A, Afrin LB, Molderings GJ. Mast cell activation symptoms are prevalent in Long-COVID. Int J Infect Dis. 2021 Nov;112:217-226. doi: 10.1016/j.ijid.2021.09.043. Epub 2021 Sep 23. PMID: 34563706; PMCID: PMC8459548.

Mast Cell Action Brochure _ B&W

Cosegregation of postural orthostatic tachycardia syndrome, hypermobile Ehlers-Danlos syndrome, and mast cell activation syndrome

Vadas P, Guzman J, McGillis L, Mittal N, Walsh S. Cosegregation of postural orthostatic tachycardia syndrome, hypermobile Ehlers-Danlos syndrome, and mast cell activation syndrome. Ann Allergy Asthma Immunol. 2020;125(6):719-720. doi:10.1016/j.anai.2020.08.015

The relationship between mast cell activation syndrome, postural tachycardia syndrome and Ehlers-Danlos syndrome

Wang E, Ganti T, Vaou E, Hohler A. The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome. Allergy Asthma Proc. 2021;42(3):243-246. doi:10.2500/aap.2021.42.210022

Mast cell activation syndromes and anaphylaxis: Multiple diseases part of the same spectrum

González-de-Olano D, Matito A, Alvarez-Twose I. Mast cell activation syndromes and anaphylaxis: Multiple diseases part of the same spectrum. Ann Allergy Asthma Immunol. 2020;124(2):143-145.e1. doi:10.1016/j.anai.2019.11.023

Patient characteristics of suspected mast-cell activation syndrome with sinonasal obstruction: a single institution experience

Kim JH, Xi S, Ference EH, Ge M, Liu MM, Wrobel BB. Patient characteristics of suspected mast-cell activation syndrome with sinonasal obstruction: a single institution experience. Int Forum Allergy Rhinol. 2020;10(8):996-1000. doi:10.1002/alr.22558

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