This pack can be used to share information about MCAS with teachers and other care-givers.
Use this letter template along with the Freedom kit to share your child's needs with their school or childcare provider
When we are feeling worried or scared it can be tricky to find a way to feel better about the things that are bothering us. Download and complete this plan which you can follow when those worries feel overwhelming.
People with chronic illnesses like MCAS often have limited energy. In the spoon theory, by Christine Miserandino, this is represented as having 12 spoons per day. This can help to explain the impact of some everyday tasks on those living with chronic illness.
This toolkit contains information about substances in food and in the environment that can affect mast cell activity or trigger MCAS symptoms. It also includes practical advice to help you understand and avoid these triggers, as needed.
This histamine bucket is a useful visual aid in trying to understand the impact of factors contributing to histamine levels.
A free app developed by the Food Intolerance Network, Australian Society for Public Health. It contains comprehensive information about foods containing histamine, sorbitol, gluten, lactose, fructose and FODMAPs.
A smartphone app that provides practical, evidence-based information about foods containing common triggers such as histamine, tyramine, lactose, fructose, sorbitol and fructose.
A smartphone app developed by experts at Monash University. Contains detailed information about foods containing FODMAPs as well as a useful symptom tracker feature.
SIGHI is an organisation that provides information about histamine-related disorders.
Blogs, books and recipes written by the low histamine chef (Yasmina Ykelenstam), a health journalist who has managed her own histamine intolerance for more than 10 years.
An infographic of a patient's experience with MCAS.
A leaflet discussing diagnostic criteria, biomarker tests and important information for diagnosis.
Weinstock LB, Brook JB, Walters AS, Goris A, Afrin LB, Molderings GJ. Mast cell activation symptoms are prevalent in Long-COVID. Int J Infect Dis. 2021 Nov;112:217-226. doi: 10.1016/j.ijid.2021.09.043. Epub 2021 Sep 23. PMID: 34563706; PMCID: PMC8459548.
Vadas P, Guzman J, McGillis L, Mittal N, Walsh S. Cosegregation of postural orthostatic tachycardia syndrome, hypermobile Ehlers-Danlos syndrome, and mast cell activation syndrome. Ann Allergy Asthma Immunol. 2020;125(6):719-720. doi:10.1016/j.anai.2020.08.015
Wang E, Ganti T, Vaou E, Hohler A. The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome. Allergy Asthma Proc. 2021;42(3):243-246. doi:10.2500/aap.2021.42.210022
González-de-Olano D, Matito A, Alvarez-Twose I. Mast cell activation syndromes and anaphylaxis: Multiple diseases part of the same spectrum. Ann Allergy Asthma Immunol. 2020;124(2):143-145.e1. doi:10.1016/j.anai.2019.11.023
Kim JH, Xi S, Ference EH, Ge M, Liu MM, Wrobel BB. Patient characteristics of suspected mast-cell activation syndrome with sinonasal obstruction: a single institution experience. Int Forum Allergy Rhinol. 2020;10(8):996-1000. doi:10.1002/alr.22558
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