Articles
The Mastocytosis Society Survey on Mast Cell Disorders: Part 2-Patient Clinical Experiences and Beyond
Russell N, Jennings S, Jennings B, et al. The Mastocytosis Society Survey on Mast Cell Disorders: Part 2-Patient Clinical Experiences and Beyond. J Allergy Clin Immunol Pract. 2019;7(4):1157-1165.e6. doi:10.1016/j.jaip.2018.07.032
Mast Cell Activation Syndrome Mimicking Breast Cancer: Case Report With Pathophysiologic Considerations
Molderings GJ, Knüchel-Clarke R, Hertfelder HJ, Kuhl C. Mast Cell Activation Syndrome Mimicking Breast Cancer: Case Report With Pathophysiologic Considerations. Clin Breast Cancer. 2018;18(3):e271-e276. doi:10.1016/j.clbc.2017.12.004
Symptoms of Mast Cell Activation: The Patient Perspective
Jennings SV, Slee VM, Finnerty CC, Hempstead JB, Bowman AS. Symptoms of Mast Cell Activation: The Patient Perspective [published online ahead of print, 2021 Jul 13]. Ann Allergy Asthma Immunol. 2021;S1081-1206(21)00494-4. doi: 10.1016/j.anai.2021.07.004
Nonhistaminergic idiopathic angioedema may be a presentation of mast cell activation syndrome.
Afrin LB. Nonhistaminergic idiopathic angioedema may be a presentation of mast cell activation syndrome. J Investig Allergol Clin Immunol. 2013;23(3):212.
Immunology and clinical manifestations of non-clonal mast cell activation syndrome
Cardet JC, Castells MC, Hamilton MJ. Immunology and clinical manifestations of non-clonal mast cell activation syndrome. Curr Allergy Asthma Rep. 2013;13(1):10-18. doi:10.1007/s11882-012-0326-8
Mast Cell Activation Syndrome: A Primer for the Gastroenterologist
Weinstock LB, Pace LA, Rezaie A, Afrin LB, Molderings GJ. Mast Cell Activation Syndrome: A Primer for the Gastroenterologist. Dig Dis Sci. 2021;66(4):965-982. doi:10.1007/s10620-020-06264-9
Mast cell activation disease: a concise practical guide for diagnostic workup and therapeutic options
Molderings GJ, Brettner S, Homman J et al. Mast cell activation disease: a concise practical guide for diagnostic workup and therapeutic options
Medication log - adult
A medication timetable to log daily medications
Doctor visit preparation form
A form designed to help you to plan the questions you would like to ask and symptoms you would like to discuss at medical appointments.
Download the poster presented at BSG 2021
Dear Doctor, Could your patient’s unexplained gastrointestinal symptoms be caused by Mast Cell Activation Syndrome?
The puzzle of you
In the same way that a jigsaw is made up of lots of different pieces, each of us are madeup of lots of different parts too. This puzzle can help you to talk about MCAS being just one part of that puzzle.
Your wellbeing bucket
An exercise to help children identify the things which make them feel good, those which don't and what helps them to feel better when things aren't going so well.
The puzzle of you
In the same way that a jigsaw is made up of lots of different pieces, each of us are made up of lots of different parts too. This jigsaw helps us to see that MCAS is just one piece of the puzzle.
Medication log - children
A medication log blank which you can use to record medications, dosages and medication times in order to keep on track.
Ball of wool game
The ball of worries activity introduces children to a practical coping strategy to make thoughts and worries appear more manageable.
Casper the chameleon colouring page
A colouring picture of Casper the chameleon to download and print. We would love to see your completed pictures!
The utility of measuring urinary metabolites of mast cell mediators in systemic mastocytosis and mast cell activation syndrome.
Butterfield J, Weiler CR. The utility of measuring urinary metabolites of mast cell mediators in systemic mastocytosis and mast cell activation syndrome. The Journal of Allergy and Clinical Immunology: In Practice. 2020 Sep 1;8(8):2533-41.
Mast Cell Disorders Committee Work Group Report: Mast cell activation syndrome (MCAS) diagnosis and management.
Weiler CR, Austen KF, Akin C, et al. AAAAI Mast Cell Disorders Committee Work Group Report: Mast cell activation syndrome (MCAS) diagnosis and management. J Allergy Clin Immunol. 2019;144(4):883-896.
Recent advances in our understanding of mast cell activation–or should it be mast cell mediator disorders?. Expert review of clinical immunology.
Theoharides TC, Tsilioni I, Ren H. Recent advances in our understanding of mast cell activation–or should it be mast cell mediator disorders?. Expert review of clinical immunology. 2019 Jun 3;15(6):639-56.
Afrin LB, Ackerley MB, Bluestein LS, et al. Diagnosis of mast cell activation syndrome: a global 'consensus-2'
Afrin LB, Ackerley MB, Bluestein LS, et al. Diagnosis of mast cell activation syndrome: a global" consensus-2". Diagnosis (Berlin, Germany). 2020 Apr 22.
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